My Nonprofit Reviews

As a parent with a child that has Dravet Syndrome, the Dravet Syndrome Foundation (DSF), has been an integral part of our family since our diagnosis in winter 2014. DSF adheres to their mission by "aggressively raising money for research," while keeping costs of operations and general cost of the organization very low. They connect families with other families. It's because of them that we don't feel alone in the world of rare disease. DSF is the first place I go to find up to date and current information regarding treatment, research, and news of what's happening in our quest to find a cure. It's also the first place I send anyone looking for more information. DSF is why we have hope for the future.