My Nonprofit Reviews

Our daughter of 3 months got the diagnosis STXBP1 in January 2021. I had to wait a couple of days before searching the web for what it actually meant this horrible news we were given.
Discovering the website stxbp1disorders.org and the sentence Science+love=cure made me feel that someone was doing something here and now to help these kids. It was not just a dusty Wikipedia page with information ABOUT the disease but someone had a plan for the future that involved a cure. I am forever grateful to go down this rough path with these dedicated parents.