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Nbyrd3

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1 reviews

Review for Dravet Syndrome Foundation , Cherry Hill, NJ, USA

Rating: 5 stars  

Dravet Syndrome Foundation, Inc. is not just your average foundation that supports you with educational and research updates. This foundation supports the family and the life of child diagnosis with Dravet in every aspect. Our family had to evacuate during Hurricane Ida with the potential hazards of losing power, weathering through the unknown severity of a category 4 hurricane, and limited essential resources available. These conditions placed our child with Dravet Syndrome at risk. We evacuated to Dallas where we could be close by a knowledgable children's hospital of her diagnosis, endless supplies for essential living, and staying together as a family. DSF provided an opportunity for additional assistance awarding a grant that supplied our family financial support while away from home. The financial support allowed us to fill our daughter's medication, maintain her diet restrictions, and supply her essential needs. Not only did DSF award us this grant, they also reached out personally to check on us. This foundation is like no other and these small gestures is what makes this lethal diagnosis so bearable by the ability to be supported no matter life's obstacles. DSF goes above and beyond being a non-profit organization and truly cares about each family that is in this for life. Thank you DSF for supporting our family!

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