My Nonprofit Reviews

Pure exhaustion prompted me to ask for help. I received the SAMI monitoring system and two Big Mack communication buttons. I am a single parent it's very hard on me having to take care of everything by myself. I was hardly sleeping at night. My son co-slept with me the majority of the time because, otherwise I would get up a million times a night to make sure he's not suffocating. He has a tendency to roll on his stomach and that's usually when he has a seizure due to him suffocating. I had him lay with me to avoid all these problem s. But, he's almost 6 and I felt it's healthier to sleep in his own room. My son is also nonverbal and it would become frustrating because he couldn't tell me his wants and needs. Jaime from the Dravet Syndrome was so kind and helpful. I knew exactly what to send and to whom to send it to. I was treated with respect. The whole process was seamless and confidential. I am so grateful for the Dravet Foundation. Our quality of life has improved so much already!!