My Nonprofit Reviews
SyngapRF
Review for Dravet Syndrome Foundation , Cherry Hill, NJ, USA
DSF is the very best. We copy them and learn from them every single day. So grateful for their leadership & example.
Review for Peter Cohen Foundation, Seattle, WA, USA
This is a wonderful organization doing all they can to fight for ALS patients. The CEO is passionate and brilliant. They are lucky to have her.
Review for Shwachman-Diamond Syndrome Alliance Inc, Woburn, MA, USA
The leader of this organization is non-stop and so very dedicated. We see her at every turn trying to help her community. SDS patients are lucky to have such a dedicated, talented and hard-working professional working. on their behalf.
Review for FOXG1 Research Foundation, Sands Point, NY, USA
What an amazing organization. Nicole & Nasha, along with their board and scientists, have moved mountains for children with this rare genetic neurological disease. We have learned so much watching them work. Organizations like this deserve more support.
Review for Treatments For Epilepsy And Symptoms Of Slc13a5 Foundation, Menlo Park, CA, USA
Patients with SLC13A5 are lucky to have Kim Nye working tirelessly on their behalf. This organization has moved mountains for children who may otherwise have been overlooked. What a remarkable accomplishment. They have also been acknowledged as leaders through their membership in Rare as One. Bravo!
Review for STXBP1 Foundation, Holly Springs, NC, USA
This is a remarkable organization. Started by 5 families they are moving mountains to accelerate a therapy for kids with STXBP1. As the leader of another Rare Disease organization, we have seen this team in action up close and we are impressed. STXers are lucky to have this group.
