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Tatiana M.1

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1 reviews

Review for Dravet Syndrome Foundation , Cherry Hill, NJ, USA

Rating: 5 stars  

Finding this foundation saved me from a dark place... My daughter was diagnosed with Dravet Syndrome at 3 months and my world shattered. I had never heard of the condition, was afraid of the unknown, but through this foundation I gained knowledge and understanding. Through their social media I have gathered support from other parents and I don’t feel alone. Not only did they save me mentally but I was able to receive a monitor to watch for seizure activity while my baby is sleeping which has helped us to find peace of mind. They also assisted our family in getting a generator for hurricane season so we won’t have to worry about medications spoiling or intense heat temperatures that would spike more seizures in me baby girl. I can never thank this organization enough, but I will always try my best to share and seek donations to give back to them and so that can continue their amazing mission helping others in need

Role:  Client Served