My Nonprofit Reviews

Daunte is my 10 year old son with dravet syndrome and has trouble with a lot of things some people take for granted such as temperature regulation, communication, danger awareness, and many other things associated with dravet syndrome. Just a year ago we were forced to try to keep him in the house in the ac because any extreme temperature change sends him into violent seizures, he also has very little to no speech and can't tell us if something is hurting, or if he needs something and will attempt to try to get to things that are sometimes in dangerous places. Through the generosity of the Dravet Syndrome Foundation grants we were able to get him a cooling vest and an Ipad. It's truly been a blessing. He is now able to go out and enjoy the yard and get to appointments and enjoy being outside with his siblings without having violent seizures. He is able to use a communication app on his Ipad to let us know if he is hurt or needs/wants something. It also helps the doctors and therapists when he starts getting overstimulated or anxious during tests and procedures. His speech is also emerging and improving tremendously. We are so grateful for the Dravet Syndrome Foundation and all they do for our family.