My Nonprofit Reviews

Both of my now adult children have the SCN1a gene variant and my son is on the Dravet end of the spectrum. I honestly don't think my kids would have made it to 26 and almost 23. The resources shared by this group are tremendously helpful, and I have never seen another organization with such a high percentage of funds raised going to research. We so need a cure in my children's lifetime, and because of this group, we are hopeful. I have known some of these families for over 15 years, and it is so reassuring to see these children grow up. Thank you, Dravet Syndrome Foundation!!